Definition of a SHINE Survivor Advocate

SHINE Survivor Advocate is a stroke survivor who actively participates in shaping and advancing stroke systems worldwide through lived experience-driven leadership. These advocates

Criteria for Inviting Stroke Survivor Advocates

To ensure SHINE’s network is composed of committed, experienced, and representative stroke survivors who can effectively contribute to survivor-led governance, global inclusivity, and action-oriented advocacy, the following criteria will guide invitations:

  • Serve as voices of lived experience, ensuring that stroke policies, rehabilitation programs, and support services reflect real survivor needs.

  • Engage in global collaboration, connecting with survivor leaders across regions to share best practices and develop innovative, person-originated care solutions.

  • Lead grassroots advocacy initiatives, influencing local, national, and international stakeholders to adopt more inclusive, equitable, and survivor-centered approaches.

  • Contribute to survivor-led governance, participating in decision-making processes that guide SHINE’s strategic direction and activities.

  • Help co-create educational tools and resources that empower survivors.

  • Promote inclusion and empowerment, fostering a supportive community where diverse survivor voices are honored and amplified.

Lived Stroke Experience

Must be a stroke survivor with personal lived experience of stroke.

Commitment to Survivor-Led Advocacy

Demonstrates a genuine interest in influencing stroke-related policies and support systems from a survivor’s perspective.

Leadership and Collaboration Potential

Shows willingness and ability to engage in leadership roles, collaborate with peers across regions, and participate in advocacy initiatives.

Communications

Committed to sharing personal insights and engaging thoughtfully in collaborative discussions.

Diversity and Inclusivity

Represents diverse backgrounds, including geographic and cultural to ensure broad inclusivity.

Availability and Commitment

Enthusiastic about committing time and effort to support and advance SHINE’s mission through active involvement.

Ethical and Respectful Conduct

Committed to maintaining respectful, inclusive, and supportive interactions within the SHINE community.